{"id":7178,"date":"2022-03-29T15:54:23","date_gmt":"2022-03-29T15:54:23","guid":{"rendered":"https:\/\/www.breakthrought1d.org\/northernflorida\/?p=7178"},"modified":"2025-11-26T19:24:34","modified_gmt":"2025-11-26T19:24:34","slug":"heart-to-heart-t1d-caregiver-spotlight-andrea-carlile","status":"publish","type":"post","link":"https:\/\/www.breakthrought1d.org\/northernflorida\/2022\/03\/29\/heart-to-heart-t1d-caregiver-spotlight-andrea-carlile\/","title":{"rendered":"Heart to Heart: T1D Caregiver Spotlight \u2013 Andrea Carlile"},"content":{"rendered":"

Our March \u201cHeart to Heart: T1D Caregiver Spotlight\u201d is on Andrea Carlile! Andrea is the education department chair and assistant professor for the Flagler College-Tallahassee campus. She also serves on the Breakthrough T1D Northern Florida board as the Advocacy Team Chair (ATC).<\/p>\n

\"\"<\/p>\n

Andrea\u2019s first type 1 diabetes (T1D) connection was her brother, who was diagnosed as an adult during his final year of graduate school. Later on, her own son Crew was diagnosed shortly after he turned three years old. When Crew was diagnosed with T1D, Andrea\u2019s brother suggested that they reach out to their local Breakthrough T1D chapter \u2013 the North Florida Chapter. Over the years, their family attended One Walks and participated in their own fundraisers as well. Eventually, Andrea stepped onto the Chapter\u2019s Board, and later went on to become the ATC.<\/p>\n

Andrea covers the 1st<\/sup>\u00a0through 6th<\/sup>\u00a0congressional districts in northern Florida, and her job as ATC is to use conventional methods, and create new ones, for reaching a wider audience and spreading the message about Breakthrough T1D Advocacy. She has a wide territory in which it is crucial that she gathers as many volunteer advocates as possible to push for Breakthrough T1D\u2019s legislative priorities and respond to Breakthrough T1D Advocacy action alerts.<\/p>\n

Since Crew\u2019s diagnosis 10 years ago, the Carlile family has participated in every local Breakthrough T1D Walk and hosted their own events to raise money. Andrea\u2019s commitment to Breakthrough T1D\u2019s mission and passion for advocacy is truly inspiring, as well as her drive and dedication to providing the best care for Crew. Below you will find some insightful, truthful advice from Andrea about being a T1D caregiver:<\/strong><\/p>\n

Throughout your child\u2019s T1D journey, what have been the biggest challenges you faced?<\/em><\/strong><\/p>\n

\u201cLike other disabilities, living with T1D can feel lonely and isolating for the child and for the caregiver\/parent(s),\u201d says Andrea. \u201cGetting involved with Breakthrough T1D and other families that live with T1D has helped with this challenge.\u201d<\/p>\n

Breakthrough T1D has many support groups for those living with T1D and their caregivers \u2013 for more information, visit\u00a0jdrf.org\/t1d-resources\/personal-support\/<\/a>. If you\u2019re looking for local support in the Northern Florida area, send an email to\u00a0northernflorida@BreakthroughT1D.org<\/a>\u00a0and we will make sure you get connected with other families, support groups, and events we host throughout the year.<\/p>\n

While adjusting to life with a child with type 1 diabetes, are there certain things you found that helped you better manage their disease? What about something that helped give <\/em><\/strong>you hope when you were just getting started?<\/em><\/strong><\/p>\n

Andrea has continually found comfort with Crew\u2019s pre-school, elementary school, and middle school caregivers, including the staff, teachers, and nurses. Their willingness to help the Carlile family manage his disease at school has given them peace of mind. Now 13 years old, Crew is in the eighth grade and involved in theater, soccer, and chorus.<\/p>\n

What skills\/lessons has raising a T1D child taught you? For a parent of a newly diagnosed T1D, how would you compare those feelings to now?<\/em><\/strong><\/p>\n

Andrea explains that when Crew was first diagnosed, he was quite young and not fully able to verbalize how he was feeling. \u201cIt was challenging to manage such an unpredictable disease with a toddler. As the advancements with T1D technology improved and Crew matured, management of the disease has gotten better, but not yet perfect. The continual need for research advancements still remains a priority for me so that children with T1D can live long lives without complications.\u201d<\/p>\n

Why did you decide to start volunteering with Breakthrough T1D advocacy? Can you touch on why it\u2019s important for T1D mothers and caregivers to come together?<\/em><\/strong><\/p>\n

\u201cI started volunteering with Breakthrough T1D Advocacy because it gave me a chance to tell our story and advocate for issues that are important to those living with T1D,\u201d says Andrea. \u201cMembers of Congress appreciate the stories and real-life experiences that are shared when advocating for the issues important to those living with type 1 diabetes.\u201d<\/p>\n

What has Breakthrough T1D meant to\/done for your family? <\/em><\/strong><\/p>\n

Andrea and her family have enjoyed being involved on a local level with the Breakthrough T1D Walk and Gala for many years. \u201cWe have met some amazing families that live with T1D by serving on the Walk committee and attending the Gala,\u201d says Andrea. \u201cAdditionally, getting involved with Breakthrough T1D Advocacy has allowed us to connect with other advocates all over the country.\u201d<\/p>\n

What is the most important thing you would want other parents of children with T1D to know?<\/em><\/strong><\/p>\n

\u201cWhen you are met with barriers related to your child\u2019s access to accommodations at school or in the community, it is often due to a lack of education and awareness about type 1 diabetes. Connect with your local diabetes educators, fellow caregivers, or organizations like Breakthrough T1D to gather resources and input.\u201d<\/p>\n

Breakthrough T1D provides a helpful School Advisory Toolkit for Families that offers collaborative methods for educators and parents of children with T1D to ensure that every child enjoys the best possible school experience. You can view the guide here<\/a>.<\/p>\n

Living a couple hours away from a primary Breakthrough T1D market likely could be challenging. Describe how you have made effort to create community in Tallahassee for Breakthrough T1D families through volunteer leadership. <\/em><\/strong><\/p>\n

\u201cLike advocacy, fundraising gives me a sense of power with my son\u2019s disease,\u201d says Andrea. \u201cFinding creative ways to fundraise in our community through events has helped me build T1D connections locally while also benefiting T1D research.\u201d<\/p>\n

A True T1D Champion<\/strong><\/p>\n

We believe that because of parents and caregivers like Andrea, the children living with T1D in our community are given the support and care they need to succeed in life and in managing their disease. To anyone caring for a child with T1D, please know that you are not alone in the sleepless nights and heavy days. Breakthrough T1D Northern Florida is here to help you and can connect you with a network of other T1D caregivers to share advice, struggles, and words of encouragement.<\/p>\n

For more information or to submit someone for our \u201cHeart to Heart: T1D Caregiver Spotlight,\u201d please contact Brooks Biagini at\u00a0BBiagini@JDRF.org<\/strong><\/a>.<\/p>\n

\"\"<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Our March \u201cHeart to Heart: T1D Caregiver Spotlight\u201d is on Andrea Carlile! Andrea is the education department chair and assistant professor for the Flagler College-Tallahassee campus. 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