{"id":7630,"date":"2023-06-30T15:29:46","date_gmt":"2023-06-30T15:29:46","guid":{"rendered":"https:\/\/www.breakthrought1d.org\/northernflorida\/?p=7630"},"modified":"2025-12-05T20:24:14","modified_gmt":"2025-12-05T20:24:14","slug":"heart-to-heart-t1d-caregiver-spotlight-mallory-rogers","status":"publish","type":"post","link":"https:\/\/www.breakthrought1d.org\/northgulfcoastfl\/2023\/06\/30\/heart-to-heart-t1d-caregiver-spotlight-mallory-rogers\/","title":{"rendered":"Heart to Heart: T1D Caregiver Spotlight \u2013 Mallory Rogers"},"content":{"rendered":"

\"\"<\/a>June\u2019s \u201cHeart to Heart: T1D Caregiver Spotlight\u201d is on Mallory Rogers from Central Florida! Mallory and her husband, Andrew, recently moved from Utah to Central Florida with their daughter, Addie, last year. As a family, they love to go to Disney World (perks of living in Central Florida!), visit Farmers Markets, and explore local restaurants, stores, and museums. They also have a chihuahua terrier rescue named Charles Sherlock Fitzgerald. Addie likes to call him \u2018Charlie Boy!\u2019<\/p>\n

Addie was diagnosed with T1D just after her second birthday in September of 2021 \u2013 she turns 4 this summer. After Addie\u2019s diagnosis, the Rogers family had to spend a couple days in isolation in the pediatric ICU because Addie and Andrew had tested positive for COVID the week before; they say that it was a long, lonely, difficult few days. She now uses the Dexcom as her CGM and Omnipod as her insulin pump. They also did MDI for a little over a year following her diagnosis.<\/p>\n

Addie loves art projects, dance class, science experiments, and playing at playgrounds. \u201cShe is a music aficionado and requests to listen to everything from Vivaldi to The Beatles to Black Eyed Peas (we get a kick out of her music moods),\u201d says Mallory. \u201cAddie learned how to write her own name recently and is very proud of this new skill.\u201d<\/p>\n

Almost four years since Addie\u2019s diagnosis, Mallory and Andrew have worked to learn how to best manage her T1D as she grows up. Mallory has gone through all the highs and lows with their family, and learned some helpful tips for caring for a loved one with T1D.\u00a0Below you will find some insightful, realistic advice and information that comes with being a T1D caregiver:<\/strong><\/p>\n

Throughout your child\u2019s T1D journey, what have been the biggest challenges you faced?<\/em><\/strong><\/p>\n

\u201cOur biggest challenge has been asking caregivers to take on the extra responsibility,\u201d says Mallory. \u201cWe have now found several wonderful babysitters (thank you to Jules, Trinity, and Semaiah! We appreciate you so much!) and a daycare who is diligent about Addie\u2019s health and safety.\u201d<\/p>\n

The interrupted sleep to treat lows or do emergency device changes can also be a challenge. At first, the challenge was making sure Mallory and Andrew woke up to the low alarms. She set up an applet on the app \u2018IFTTT\u2019 to call her anytime Dexcom sends a low alert. Now they don\u2019t miss alarms anymore!<\/p>\n

\u201cWe\u2019ve also discovered that some extra planning when it comes to swimming is helpful,\u201d explains Mallory. \u201cWe try to do our best to time device changes several hours before swimming to allow the adhesive to settle, and we love overlay patches (especially ones that go over the device, not just around the adhesive for the device).\u201d<\/p>\n

\"\"<\/a>While adjusting to life with a child with type 1 diabetes, are there certain things you found that helped you better manage their disease? What about something that helped give\u00a0you hope when you were just getting started?<\/em><\/strong><\/p>\n

\u201cI\u2019m a bit of a bookworm (could you tell from our dog\u2019s name?), so I found several books to read in the months following diagnosis,\u201d says Mallory. \u201cI joined online support groups. I gave myself the mantra, \u2018Kid first, diabetes second\u2019 to help drive my decision-making and I constantly reminded myself not to make fear-based decisions. If Addie wants to do something, I have to shove my fear aside and find a way that we can make it happen (safely, of course).\u201d<\/p>\n

Mallory also found hope in talking to a friend who was also diagnosed with T1D very young, as well as following accounts of other people with T1D sharing their lives \u2013 knowing that she wasn\u2019t alone was very helpful.<\/p>\n

What skills\/lessons has raising a T1D child taught you? For a parent of a newly diagnosed T1D, how would you compare those feelings to now?\u00a0<\/em><\/strong><\/p>\n

\u201cWhen Addie was first diagnosed it felt like this new version of life was going to be all-consuming and things would never feel normal again,\u201d explains Mallory. \u201cI\u2019m happy to say we\u2019ve adapted to it, and the device changes, carb counting, and insulin dosing are just a part of the rhythm of our life now.\u201d<\/p>\n

Occasionally, the family says they dip back into overwhelming feelings (like last week when they went to a birthday party and in the first 5 minutes Addie\u2019s Omnipod just fell right off even though we had an overlay on!), but they\u2019re much rarer now.<\/p>\n

Can you touch on why it\u2019s important for T1D caregivers to come together?<\/em><\/strong><\/p>\n

Mallory feels a lot of fatigue around all of the extra decisions and worries that come along with a T1D diagnosis, but explains that it\u2019s nice to be able to talk to other people who experience the same thing without having to explain all of the ins and outs of caregiving.<\/p>\n

Breakthrough T1D has many support groups for those living with T1D and their caregivers \u2013 for more information, visit\u00a0jdrf.org\/t1d-resources\/personal-support\/<\/strong><\/a>. If you\u2019re looking for local support in the Northern Florida area, send an email to\u00a0northernflorida@BreakthroughT1D.org<\/strong><\/a>\u00a0and we will make sure you get connected with other families, support groups, and events we host throughout the year.<\/p>\n

\"\"<\/a>What has Breakthrough T1D meant to\/done for your family?<\/em><\/strong><\/p>\n

The Rogers Family has gotten completely involved with Breakthrough T1D since they moved to Central Florida this last year! From attending the Orlando One Walk and Addie getting V1P status, which is a huge source of pride for her, to Andrew signing up to be part of the Breakthrough T1D Running Team at the Disney Half-Marathon later this year. They\u2019re excited to cheer him on in his fundraising and training!<\/p>\n

Further, Mallory exclaims that they \u201cLOVE the Rufus bear and the app to care for Rufus\u2019s diabetes. \u201cAddie also loves to read the books that were sent in her Bag of Hope.\u201d<\/p>\n

JDRF\u2019s Bag of Hope is filled with useful resources for both the child who has been diagnosed with T1D and their caregivers. The bag also includes Rufus, the Bear with Diabetes\u00ae, to help them not feel alone while learning to take shots and test blood sugar. To learn more about the program or to request one for yourself or someone with a recent T1D diagnosis, please click here<\/a>.<\/p>\n

What is the most important thing you would want other parents of children with T1D to know?<\/em><\/strong><\/p>\n

\u201cWe started keeping a stash of low snacks upstairs for nighttime lows. GAME. CHANGER.\u201d<\/p>\n

\"\"<\/a>A True T1D Champion<\/strong><\/p>\n

We believe that because of parents and caregivers like Mallory, the children living with T1D in our community are given the support and care they need to succeed in life and in managing their disease. To anyone caring for a child with T1D, please know that you are not alone in the sleepless nights and heavy days. Breakthrough T1D Northern Florida is here to help you and can connect you with a network of other T1D caregivers to share advice, struggles, and words of encouragement.<\/p>\n

For more information or to submit someone for our \u201cHeart to Heart: T1D Caregiver Spotlight,\u201d please contact Dori Rivers at\u00a0Drivers@BreakthroughT1D.org<\/strong><\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

June\u2019s \u201cHeart to Heart: T1D Caregiver Spotlight\u201d is on Mallory Rogers from Central Florida! Mallory and her husband, Andrew, recently moved from Utah to Central Florida with their daughter, Addie, last year. As a family, they love to go to…<\/p>\n","protected":false},"author":1317,"featured_media":7639,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"ep_exclude_from_search":false,"publish_on_app_meta":"True","iawp_total_views":1,"footnotes":"","_members_access_role":[],"_members_access_error":"","bt1d_storytelling_post":false,"bt1d_storytelling_more_posts":[]},"topics":[20],"class_list":["post-7630","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","jdrf_topic-general"],"acf":[],"yoast_head":"\nHeart to Heart: T1D Caregiver Spotlight \u2013 Mallory Rogers - North Gulf Coast Chapter<\/title>\n<meta name=\"robots\" content=\"noindex, follow\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Heart to Heart: T1D Caregiver Spotlight \u2013 Mallory Rogers - North Gulf Coast Chapter\" \/>\n<meta property=\"og:description\" content=\"June\u2019s \u201cHeart to Heart: T1D Caregiver Spotlight\u201d is on Mallory Rogers from Central Florida! 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