A Letter to Breakthrough T1D from a Volunteer

The following blog post was written by a Breakthrough T1D Illinois volunteer and mother to a child recently diagnosed with type 1 diabetes (T1D). This is their story.
Breakthrough T1D is one of those organizations that you have the luxury of not knowing much about until you find yourself in the pediatrician’s office, hearing the words, “It looks like type 1 diabetes.”
Those next days in the hospital are both a blur and full of vivid moments, as you learn details about a devastating disease and the complicated way you and your loved one will learn to manage it.
It’s overwhelming and frightening.
Suddenly, the name Breakthrough T1D is everywhere. It’s behind the technology you will use to monitor diabetes. It’s behind the medicine you will use to manage blood glucose. It’s behind the community your child will feel when their Bag of Hope arrives. It’s behind the marathon your sister-in-law will run to raise money for T1D research.
Suddenly, Breakthrough T1D will be the most important organization you’ve ever known. Breakthrough T1D is why diabetes management is more sophisticated – and possible – than ever.
Breakthrough T1D is why, when our son asks, “Will there be a cure for me?” I can say “yes.” And when he asks, “How soon?” I can say, “We don’t know when the cure will come, but I promise it will get easier to manage every year.”
We have bottomless gratitude – and that doesn’t even seem like a big enough word for it – for all the work Breakthrough T1D did while we had the luxury of not knowing much about it. We also have hope.
Hope is a word that gets used a lot at Breakthrough T1D. Hope means that we believe the future is going to look even better tomorrow for people living with T1D than it does today. Hope means that wherever you are on your Type 1 journey, Breakthrough T1D is there to provide the next step – whether it’s a connection to another family, information about pumps, or simply encouragement, with the latest research on solving the daily problems of type 1 diabetes.
Breakthrough T1D is more than a research organization. It’s a community. It’s the next step on your journey. It’s a place of integrity and innovation. It’s what’s going to save us, and it’s what’s going to cure our loved ones.
Thank you, Breakthrough T1D. For how far you’ve come, when we were not even looking, and how far we know you will take us, now that we cannot take our eyes off of you.
~ Margaret Jessen Kelley, mother of Edgar (born in 2010, diagnosed November 2021)