This May, Matt Varey, a key volunteer with Breakthrough T1D since 2001, will embark on an ambitious two-month-long, 7,500-kilometer cycling journey across Canada.
As Matt rides Coast-to-Coast for Cures in support of Breakthrough T1D, his goal is that his passion and drive will inspire people to give generously to make each day better for those living with type 1 diabetes (T1D) while driving toward cures.
Matt has held a series of key volunteer roles within Breakthrough T1D. He currently serves on both the Breakthrough T1D International Board of Directors as Vice Chair and the Breakthrough T1D Canada Board of Directors.
Matt sat down with Breakthrough T1D Canada to share more about his motivations behind taking on such an ambitious fundraiser and why supporting the T1D community is so important to him.
You’ve been involved with Breakthrough T1D as a volunteer and board member for over 20 years. How did you first get connected with the organization?
Matt Varey: My relationship with Breakthrough T1D (then JDRF) started in 2001. My job at the Royal Bank of Canada (RBC) transferred me to Toronto. At that time, we were asked to build a new Canadian business within the bank, and it entailed me and other leaders going across Canada and speaking to employees very passionately and credibly about what they were going to help build.
Banking is a human business based on trust. I had to get out of my introverted shell and talk to employees, so I would ask them, “Who are you as a person? I want to get to know you as a human beyond just work.” I had no idea what Breakthrough T1D (then JDRF) was at the time. And you’d hear from people about their kids or sports, but one or two people would get teary or speak with a crack in their voice. So, naturally, I would probe a bit and ask more, and they would tell me about their family member and their journey with T1D.
So, when I got back from this Canada-wide work trip, I learned about the Breakthrough T1D “battle of the banks” Ride and thought to myself, “Wow, I have to do this.” That spring, I was part of the RBC Ride team. I saw all these people raising money for T1D research, and I made this connection to the people I met along that work trip affected by T1D, and I got the bug. My mother always said, “What’s given is yours forever,” and I knew I had a new purposeful journey with Breakthrough T1D.
It all flowed from there. I became the chair of the RBC Ride Cabinet and then the National Cabinet Chair. I saw the power of progress; I saw the dedication and the passion of people. I said, “I can’t stop at the Ride.” And then I met a fabulous mentor, one of the most important people in my life, Peter Oliver.
Peter was one of the founding fundraisers of what was then JDRF Canada because of his daughter Vanessa, who lives with T1D. He was such a giving person, and he taught me things I will never forget about giving back. He told me, “Always think big, never take no for an answer.”
Peter was the definition of a mentor, about what Breakthrough T1D stood for and the people who worked there. And he knew that he had this young guy named Matt who would follow anything he asked. I’ve been a Board Member, Vice Chair, and Chair of Breakthrough T1D Canada, and I’ve never felt a culture of giving, togetherness, and dedication like I do from the people at this organization. This led me to being a board member of Breakthrough T1D International (headquartered in the United States), and now I am currently the Vice-Chair of Breakthrough T1D International.
This journey can be credited in so many ways to Peter, who was, is, and always will be my north star.
I’ve never felt a culture of giving, togetherness, and dedication like I do from the people at this organization.”
How did you devise the idea for Coast to Coast for Cures?
Matt Varey: As I retired in the summer of 2024, I thought about something my mum always taught me: “Never stop moving and never let the old man in.” So, with mentors like my mum telling me to “keep moving” and Peter Oliver saying, “Make sure it’s big, make sure it stands out, and make sure it challenges you,” I came up with the idea for the event.
Riding across Canada for 57 days and 7,500 km coast to coast for a cause is doing something different, and honestly, it scares me, which is good. I also love Canada so much, so that’s part of my journey, too. And I knew RBC would always have my back. As a mission, values-based organization, they told me in my retirement that if I ever did anything for Breakthrough T1D, they would be involved and support me 100%.
I want to challenge myself and hold true to my mum and Peter. My wife said she would take two months off work, bring the dog, and drive behind me. My wife is my everything, and I could never do this without her.
And one evening I made a public proclamation that I was going to do this, and then there was no turning back.
The world is changed by your actions, not by your words.”
What are you most excited about for the ride, both personally and for raising awareness of Breakthrough T1D and type 1 diabetes?
Matt Varey: The world is changed by your actions, not by your words. Human beings, deep inside, want to see people accomplish something that is hard but shows dedication. I think that it attracts human beings to be generous. If we’re going to be asking people to help us raise half a million dollars, they want to see your skin in the game.
I’m excited about seeing the generosity of people. I’m an optimist; I always believe tomorrow is going to be better than today. I’m excited to see Canada for two months with my wife and see my former RBC colleagues, whom I miss dearly.
Do you have a message for the Breakthrough T1D community?
Matt Varey: We will never ever stop moving forward for cures. Ever. And I am just one of thousands and thousands of incredibly dedicated volunteers who also wake up every day and say the same thing, with even more credibility than myself.
As Mary Tyler Moore, who lived with T1D herself, would say, “You can’t be brave if you’ve only had easy things happen to you.” And people who live with T1D are brave every day. So please know that my commitment to you is also to be brave. And we will never ever stop until we get to a world free from type 1 diabetes.
To follow Matt’s progress on his journey or to support him, please visit http://www2.breakthrought1d.org/goto/coast2coast4cures.
Visiting our site from Canada? Please click here to support Matt.
Editor’s note: This interview is an abbreviated version of one previously published by Breakthrough T1D Canada. Read the full interview here.
Breakthrough T1D Ride isn’t just about cycling—it’s a movement committed to finding cures for type 1 diabetes (T1D).
No matter where you live, how you choose to ride, or how far you go, you’re surrounded by the T1D community—fellow riders, coaches, friends, and family—cheering you on at every milestone. It’s a fundraising experience like no other.
We’re gearing up for an incredible Breakthrough T1D Ride 2025 season, biking toward a world without T1D. Check out this year’s beautiful destinations!
La Crosse, Wisconsin
August 7-10, 2025
Set against the stunning backdrop of Wisconsin’s bluffs and the mighty Mississippi River, this ride begins in La Crosse and spans three states. Perfect for families and beginners, our La Crosse Ride offers a variety of distance options and breathtaking Midwest views that are sure to leave a lasting impression.
Santa Fe, New Mexico
August 21-24, 2025
Immerse yourself in the enchanting beauty at our Santa Fe Ride, an unforgettable event that takes you through the heart of New Mexico. With route options up to 100 miles, cyclists of all levels will be captivated by the stunning views of red-rock canyons, high-desert mesas, and the iconic Sangre de Cristo Mountains. Perfect weather and dramatic scenery make this a ride that will stay with you long after you’ve crossed the finish line.
Cape Cod, Massachusetts
September 11-14, 2025
Discover the scenic charm of New England for our first-ever Cape Cod Ride, an event that offers a blend of flat roads and iconic coastal vistas. With route options extending up to 100 miles, riders of all abilities can enjoy winding through quaint seaside villages, salt marshes, and sandy beaches. Whether you’re captivated by the historic lighthouses or the endless horizon of the Atlantic, this is a Ride that promises unforgettable memories.
*Cape Cod route subject to change.
*Cape Cod Rider packages are sold out. Please keep checking back as more Rider packages may become available. Or, register as a volunteer!
Coeur d’Alene, Idaho
September 25-28, 2025
Tucked in the scenic beauty of Northwest Idaho, the Coeur d’Alene Ride showcases lush, forested roads and serene lakes while steering clear of the area’s steep mountain routes. Whether you’re tackling the relatively flat 20-mile ride along Lake Coeur d’Alene or pushing your limits on the demanding 100-mile century route, there’s something for every rider. The Coeur d’Alene Ride is truly a bucket-list experience.
Amelia Island, Florida
December 4-7, 2025
Experience the natural beauty of Northeast Florida on the Amelia Island Ride. Riders will be treated to flat roads draped in Spanish Moss and sweeping ocean views as they explore this stunning destination. With route options ranging up to 100 miles, cyclists of all levels can enjoy scenic rides through pristine beaches, marshlands, and maritime forests. With vistas like these, the Amelia Island Ride is one you won’t want to miss.
My Ride
Your way, your day!
With Breakthrough T1D My Ride, you have the flexibility to join a local ride in your area or create your own mileage and fundraising challenge. You will still receive guidance from coaches and your local Breakthrough T1D chapter to help you reach your goals.
During the recent NFL playoff game between the Baltimore Ravens and the Buffalo Bills, Ravens tight end Mark Andrews missed a catch that would have tied the game in its final moments. The Bills went on to win, eliminating the Ravens from Super Bowl running.
Some Ravens fans were upset by Andrews’ fumble and began posting negative comments online about him.
The Bills’ devoted fan base, affectionately known as the Bills Mafia, stepped up and responded with kindness. A GoFundMe page was set up in honor of Mark Andrews’ charity of choice: Breakthrough T1D. The fundraiser has brought in more than $90,000 in donations, and that number continues to rise.
“The response has been overwhelming, to say the least,” said Nicholas Howard, GoFundMe organizer and creator of the Buffalo Bills news page @thebuffalobrief. “This fundraiser started out with an original goal of $5,000. It’s truly remarkable what we were able to do.”
Bills fans have a history of donating to causes supported by players on opposing teams. It’s the fans’ way of showing sportsmanship and turning negativity into philanthropy.
“I hope this spreads awareness (of) a misunderstood disease,” Howard said. “I knew this charity was near and dear to (Mark Andrews’) heart, and after seeing the distasteful comments people were leaving, I wanted to cheer him up and let him know we’ve got his back.”
A champion for the T1D community
Mark Andrews was diagnosed with type 1 diabetes (T1D) in 2005 at age nine and drafted by the Baltimore Ravens in 2018. His personal story of perseverance in overcoming the daily challenges of T1D and achieving his dreams inspires the T1D community. Mark is committed to advocating for people living with T1D, raising awareness, and educating the public about the condition. He has served as a Breakthrough T1D Youth Ambassador, participated in Breakthrough T1D Walks, and selected Breakthrough T1D as his charity for several annual NFL My Cause, My Cleats Campaigns.
The Baltimore Ravens praised Bills fans and Breakthrough T1D in a post on Twitter/X:
Accelerating T1D breakthroughs
With donor support, Breakthrough T1D is creating a movement to improve and change life with type 1 diabetes, advancing breakthroughs on the way to cure the condition.
No organization does more to improve everyday life with T1D—from driving millions of dollars of global investment in therapy development and access to advancing research, advocacy, and community support.
“Breakthrough T1D (formerly JDRF) greatly appreciates the generosity of the Buffalo Bills community and the many fans who were compelled to donate after Sunday’s game,” said Pam Morrisroe, Breakthrough T1D Chief Marketing Officer. “These donations will support research and advocacy on behalf of the nearly 1.6 million Americans who, like Mark Andrews, live with type 1 diabetes.”
Breakthrough T1D Walk is a nationwide movement where thousands rally to transform the future for those with type 1 diabetes (T1D). As the largest global event for the T1D community, Walk brings together those impacted by T1D to celebrate, educate, and fundraise for T1D research.
There are many ways to participate in a Breakthrough T1D Walk, from forming a friends and family team to starting a corporate team or building a virtual team! Meet three teams that are changing the lives of people with type 1 diabetes, one step at a time.
Stronger Together: The Power of Family
Oliver Christy was two years old when he was diagnosed with T1D in 2010. His family immediately jumped into action and started the Breakthrough T1D Walk team, Jolly Ollie, to raise funds for T1D research.
“I love the sense of community at the walk,” Oliver’s mom Karla said. “It was nice to not have people staring at us when we gave Oliver a shot of insulin so he could eat a snack. We watched someone change their pump site right out in the open!”
Because first-degree family members are at an increased risk for developing the condition, Oliver’s siblings, Miles and Stella, were screened shortly after their brother’s diagnosis. Stella had no T1D autoantibodies; Miles had one. The Christy family spent the next several years cautiously optimistic.
Then, in 2019, Stella was diagnosed with T1D after being admitted to the hospital with a blood glucose reading of over 900. Since Team Jolly Ollie no longer worked, the family changed the team’s name to Stronger Together.
Earlier this year, Miles was diagnosed with T1D. Whereas Oliver and Stella were diagnosed in Stage 3 (symptomatic) T1D, thanks to early detection, the doctors identified the condition in Miles at an early stage, avoiding a scary emergency diagnosis like his older siblings.
Most recently, the mother of one of Oliver’s friends was diagnosed with T1D in her 40s. The Christy family has more reasons than ever to be Stronger Together. “T1D can feel like an island sometimes,” Karla said. “The Walk is a reminder that we have a support group. It takes a village, and I am thankful for ours.”
Team Lilly: A Corporation That Cares
Lilly has been a global leader in diabetes care for over 100 years, since launching the first commercially available insulin in 1923. As a valued Breakthrough T1D partner since 1997, Lilly has raised millions through various initiatives and donated millions directly to research.
The Breakthrough T1D Walk is an important way for Lilly to show support for the local T1D communities and engage its employees in a cause that’s important to them. By gathering at walks across the country and raising money for type 1 diabetes research, Lilly team members hope to improve the lives of people living with type 1 diabetes while enjoying time together outside of the office!
Bianca and Olivia’s T1D Support Squad: Virtually Powering Breakthroughs
In August 2000, at age 5, Olivia Volpetti was diagnosed with T1D during a routine physical. Since then, the Volpetti family has been determined to make a difference, raising awareness and funds for T1D research through Breakthrough T1D Walk. “Walk is a core memory for us,” Olivia’s sister, Bianca, said.
In 2023, Bianca was planning her wedding but wasn’t feeling like herself—she attributed her weight loss and increased appetite to how busy she was. A visit to the doctor and then the hospital revealed she was in DKA and had T1D. “As Olivia would tell you, it’s because I obviously had to copy her,” Bianca joked.
Today, Olivia is “Dr. Liv,” a 29-year-old occupational therapist, and Bianca is happily married. Both are thriving.
More than ever, Olivia and Bianca’s mom, Donna, is a champion for her daughters and a devoted fundraiser for T1D research. “I am very grateful for all the ways that we now have to keep T1D under control and for those affected to live healthy, active lives,” she said. “My daughters are doing great because of it all.”
This year, the Volpetti family is holding a virtual walk the weekend of Thanksgiving so all their friends and family, near and far, can help fuel the breakthroughs that have allowed Olivia and Bianca to live their lives to the fullest.
Join the movement to transform life with type 1 diabetes. Start your own Breakthrough T1D Walk team today!
The leadership, staff, and volunteers of Breakthrough T1D mourn the tragic, sudden loss of five type 1 diabetes (T1D) champions on Friday, Nov. 1, 2024.
That night, five people who were pillars of the Breakthrough T1D Ride community died in a tragic, single-car accident.
The group included two married couples and one single individual—all very close friends and veteran Breakthrough T1D Ride participants.
All five people were inside the vehicle at the time of the accident—no one was riding a bicycle at the time.
The greatest group of people you wish you didn’t need to know
Understandably, the tragedy sent shockwaves through the tight-knit Ride community, as well as the entire Breakthrough T1D organization.
Chris Eaton, a lead volunteer partner of Breakthrough T1D Ride and the Ride Advisory Council, knew all five people well.
“It’s said, ‘Ride is the greatest group of people you wish you didn’t need to know.’ Our friends embodied that feeling of inclusion, hope, and a steadfast focus on getting to a cure,” said Chris. “They will be sorely missed by their family, friends, and the Ride community.”
Jeff and Michelle Bauer
Jeff and Michelle Bauer were highly involved in Breakthrough T1D Ride—especially Michelle.
“The Breakthrough T1D Ride program is a family, and Michelle exemplified this day in and day out,” said Anthony Geraci, National Director, Ride & Endurance.”
Michelle had been a dedicated T1D advocate since her son, Jesse Alswager, was diagnosed with type 1 diabetes in 2000 at the age of 3. Tragically and unexpectedly, Jesse passed away at the age of 13 on February 3, 2010.
After Jesse passed away, Michelle continued to advocate, educate, and push the envelope in his name. In honor of Jesse, the date he died—and generally all people who have passed away from T1D—Mile 23 of each Breakthrough T1D Ride is ridden in silence.
“Whether it was riding thousands of miles in memory of her late son Jesse, authoring a book to help grieving families, bringing her husband Jeff Bauer into the Ride family, to joining the Ride Advisory Council, Michelle was all in,” added Anthony.
In her spare time, Michelle had numerous other T1D-focused projects, including “Jesse Was Here,” which encompassed her work with other families around the world who had lost loved ones to T1D.
Jeff proposed to Michelle in 2018 at Mile 23 of a Breakthrough T1D Ride.
The couple had a lake house in Crandon, Wisconsin, and spent a lot of time there. They were avid boaters.
Jeff and Michelle are survived by their blended family of five children—Alexander Bauer, Claudia Bauer, Samantha Alswager, Joseph Alswager and Sara Alswager—all of whom are now adults.
Learn more about Jeff and Michelle and how to honor their lives.
“When I mentioned to Michelle off the cuff that I was thinking about completing my first Ironman, she was the first to offer up being my coach and cheerleader. The last text message I got from Michelle was on Wednesday of last week simply saying ‘Did you do it yet??’ That’s how I’ll remember Michelle. Always pushing people to be their best. Always pushing herself to be her best.”
Anthony Geraci
National Director, Breakthrough T1D Ride and Endurance
Josh and Tammy Stahl
Josh and Tammy Stahl became close friends with the Bauers through the Ride program. They rode together most recently in La Crosse last August.
Josh started riding in 2011 for his and Tammy’s son, Gavin (now 17 years old) who lives with T1D. Josh had competed in 13 rides including, Lake Tahoe, La Crosse, and Death Valley.
“I’ve been fortunate enough to talk to Josh and Tammy at rides for over a decade,” said Dan Woolf, Executive Director of Breakthrough T1D’s Wisconsin Chapter who has long been involved with Ride. “Most recently in La Crosse, where we traded stories of our spirit jerseys, kids, and what makes the Ride program special, which are the friends you make along the way.”
Josh and Tammy are survived by their sons Gavin Stahl and Blake Stahl.
Learn more about Josh and Tammy and how to honor their lives.
“The Stahls were the perfect example of that incredible spirit.They became close friends with so many people from all over the country while making such a difference for our Ride community, which is truly inspiring to me. It’s something that I’ll never forget and a testament to what wonderful people they were.”
Dan Woolf
Executive Director, Breakthrough T1D Wisconsin Chapter
Barry Sievers
Barry’s first Ride was 10 years ago. He had completed five rides including La Crosse, Nashville, and Loveland.
While he had no direct T1D connection, he was always willing to help with a smile. He hosted training rides at his house and even helped transport bikes with his trailer.
“Barry’s infectious smile and boundless energy embodied our Team Wisconsin spirit,” wrote Joe Brady and Scott Hagen in a statement they issued together.
Joe lives with T1D and is a veteran Ride coach. Scott is Barry’s best friend who recruited him for his first ride a decade ago.
Barry was the Senior Financial Manager for the Institute for Clinical and Translational Research at the University of Wisconsin—Madison.
Barry is survived by his adult son, David T. Sievers, and two school-age daughters, Emma Sievers and Addison Sievers.
Learn more about Barry and how to honor his life.
“Whether opening his home for summer training rides, spinning tales on the team bus to Nashville, or cheering on the last rider at the Loveland finish line, Barry brought joy and camaraderie to every moment. Always ready with a solution to any bike issue, his ‘can do’ attitude inspired us all to push harder, fundraise better, and pedal faster toward our goals. Barry’s good-natured warmth and easy laughter will forever be cherished and missed.”
Statement from Joe Brady and Scott Hagen
Against many headwinds
“Greg Lemond, winner of the Tour de France, once said about cycling: ‘It doesn’t get easier, you just go faster,’” said Chris Eaton.
“Against many headwinds, this group of friends led a community that embodies the imperative that we can, and will, cure type 1 diabetes despite the challenges. They will be missed.”
By Ellie Peterson
Though I do not live with type 1 diabetes (T1D) myself, I have witnessed firsthand the strength of those who do. My mom was diagnosed with T1D as a teenager, so T1D, and later the organization Breakthrough T1D, helped shape not only my relationship with and perception of my mother but also my adolescence. By witnessing how my mom has lived and thrived with T1D, I have developed a deep respect for her and a strong attachment to Breakthrough T1D’s mission.
Something specific that sticks out to me when I think back on my childhood in relation to my mom’s T1D is how safe she made it feel. I don’t have any memory of being scared for her, though I know she experienced health scares throughout my childhood. She would always reassure me that the finger pricks didn’t hurt, and I remember having a strange affinity for the glucose tablets that I would take alongside her in the car when she was low. I remember her explaining T1D to me as a kid in a way that was simple and age-appropriate, leading me to view it as merely a part of her life. I knew T1D as something that was a part of who she was but not something that limited or defined her.
Though my mom is extremely independent, I think her T1D invited a certain level of vulnerability that allowed us to become closer. I learned empathy and understanding and the ability to see and respect resilience, all of which I value deeply and will carry with me throughout my life.
Even in moments of struggle, my mom shielded my siblings and me from worrying excessively. She was able to admirably balance her health with raising three kids in a way that equally educated us and aimed to protect us from concern. She juggled medical implications, dietary considerations, and blood-sugar scares with grace. As an adult who now understands more clearly the complexities and daily struggles that come with having T1D, my respect and admiration for my mother have grown.
I also want to acknowledge that my mom has had the great privilege of an amazing and supportive network through Breakthrough T1D that provided not only community but also technology that has directly improved her quality of life. My mom was also fortunate to have extremely supportive and dedicated parents, who, shortly after my mom’s diagnosis, co-founded the Mississippi chapter and have been dedicated advocates for Breakthrough T1D’s mission since.
A heartwarming memory that I have to mention when discussing familial support is one of my dad. In my senior year of high school, my dad ran 268 miles between September and October to raise money for Breakthrough T1D before the annual Walk. He had me make custom signs to thank each donor (pictured at left). His love and support of both my mom and Breakthrough T1D are so inspiring to me and speak not only to his dedication and respect for my mom but also to the community Breakthrough T1D provides.
As I enter into adulthood and begin my internship at Breakthrough T1D this summer, I carry with me the respect and admiration I have for my mom and the organization Breakthrough T1D itself. Her journey with T1D, her strength, and her outlook on life have shaped me into the person I am today.
By Margaret Kelley
Twelve years ago, my husband Jonathan participated in the Breakthrough T1D Ride in Death Valley. It was meant to be a one-time commitment—a physical challenge for a good cause.
Fast-forward to three years ago: our son Edgar was diagnosed with type 1 diabetes (T1D) at age 11. Our world turned upside down. A few months after his diagnosis, a friend from the T1D community reached out and recommended we get in touch with their local Breakthrough T1D chapter. From that point on, we involved ourselves in Breakthrough T1D in what I can only describe as “every way possible.”
Our family has participated in One Walk, Ride, the Chicago Marathon as part of Team Breakthrough T1D, Children’s Congress, the Youth Ambassador Program, Galas, TypeOneNation Summits, and more. We have also added Breakthrough T1D to our estate planning. Dollars drive research, research drives a cure, and a cure will benefit our son, as well as the millions of other people affected by T1D.
Miles for a Cause
After Edgar’s diagnosis, my husband heard from some other parents how meaningful the Ride was. We had just bought a new Peloton, and it felt like the perfect way to direct those miles toward a cause.
Jonathan then spent the next year training for the race and fundraising for Breakthrough T1D. He connected with a new local friend whose daughter had T1D, and they made plans to ride together. We attended the Ride as a family this past September. We were deeply moved and energized by the incredible community, the money it had raised, and the athletic accomplishments of rider after rider crossing the finish line.
The Magic of Team Breakthrough T1D
The day after Edgar’s diagnosis, Jonathan’s sister asked if she could run the Chicago Marathon for Breakthrough T1D in Edgar’s honor. She then proceeded to raise over $20,000. After watching her experience, I knew I wanted to do the same thing. I signed up for the 2023 Chicago Marathon as a Breakthrough T1D runner and trained for a year, connecting with other Breakthrough T1D runners, fundraising, and doing whatever it took to get to the starting line.
There were so many hot mornings when I’d been up several times the night before with diabetes alarms. I didn’t know how I was going to finish my run, but I would tell myself, “If Edgar can do what he needs to do, I can do what I need to do.” I ended more than a few long runs in tears, exhausted and emotional from the task.
The race itself was unbelievable. Family and friends cheered me along the way, and Edgar joined me at mile 21 and ran with me until mile 25 (pictured above). I had planned to dedicate my mile 23 to the people who have lost their lives to T1D, a tradition from Breakthrough T1D Ride. The fact that my beautiful, healthy son was running next to me for that mile was not lost on me. Those last few miles, which so many people say are the worst of a marathon, were my most joyful and uplifting.
Our family, including grandparents, aunts, and uncles, have completed 852 miles for Breakthrough T1D through Ride and Team Breakthrough T1D. There is magic in running for Team Breakthrough T1D, and I can’t imagine running in any other way.
Why We Keep Going
Breakthrough T1D is everything to our family. Breakthrough T1D has given us technology, tools, medicine, and community. It is why there are fewer long-term health complications than ever before. It is why we can send our son on two-week-long outdoor trips with his class, knowing that he has the equipment to keep himself comfortable and safe. And it is why whenever we need a resource, connection, or new friendship, we can find one.
Breakthrough T1D means the world to Edgar, too. He says, “It has brought so much into my life, like community, opportunities like Children’s Congress, and hope. I can’t imagine having T1D without those things because I would feel alone and like my life wouldn’t get any better.”
Breakthrough T1D is also why we have hope for a cure. They have an incredible team of experts making both specific and broad decisions to eventually find a cure for type 1 diabetes. When the day comes that our son can take the devices off his body and stop filling his prescription for insulin, it will be because of Breakthrough T1D.
Team Breakthrough T1D provides entry into some of the country’s most exciting and challenging fitness events. Find an event now!
L-R: Saige, Samantha, and Doug Merwin at the 2022 Breakthrough T1D Ride in Saratoga Springs, NY
After their child, Saige, was diagnosed with type 1 diabetes (T1D) at 17 months old, Doug and Samantha Merwin turned to Breakthrough T1D for support.
There, they found their purpose.
First, the Merwin family joined One Walk, which inspired them to get more involved. They helped set up local T1D playgroups and worked with other parent advocates to create a local Facebook parent group, now almost 700 parents strong! Years later, Samantha worked closely with their chapter to help establish consistent community events. “My goal was—and still is—that no family should feel isolated at diagnosis,” Samantha said.
Their work with Breakthrough T1D continued to expand to include advocacy and participation on their community board, where Samantha is currently starting her third term as community engagement lead. “People often think I work at Breakthrough T1D since I volunteer at everything,” she said. “But I just do what is needed to support the T1D community.” In addition, Saige has served as a Youth Ambassador, a Breakthrough T1D Children’s Congress Delegate, and a volunteer at countless local Breakthrough T1D events.
In honor of Saige’s 10-year diaversary, the Merwins decided to participate in Walk, Ride, and Team Breakthrough T1D…all in the same year! The rest, they say, is history.
Tenacity for T1D
Saige and Samantha at the 2017 RunDisney Marathon Weekend 5K as part of Team Breakthrough T1D
Saige and Samantha started running together with Team Breakthrough T1D in 2016. “It’s such a special weekend,” Samantha said. “I love the energy, the commitment of the runners, and, of course, standing in the corrals at 3:30 a.m. waiting for the race to start.” To date, Saige and Samantha have run over 70 miles for Breakthrough T1D.
The Merwins started a fundraiser for Team Breakthrough T1D that has now carried over to Ride: they write the names of all their donors on their legs for the event. “When the ride or run gets hard, we tell them we will look down and remember that we are participating for everyone in the community, not just our family,” Samantha said.
Doug and Saige with donor names written on their legs for inspiration
Their journey with Breakthrough T1D Ride began in 2017 in Saratoga Springs, where Samantha and Saige volunteered at the finish line. It became their standard volunteer post, including the following year, when Samantha and Doug planned something special. “Saige thought Doug was working and couldn’t volunteer with us,” Samantha said. “It was a huge surprise when he crossed the finish line!”
Saige started riding with Doug in 2022. That year’s Ride held a special meaning for Samantha—she was able to put a medal around both her husband’s and child’s necks after they crossed the finish line. She was also awarded the Volunteer Dedication Jersey, which was incredibly humbling. “I truly appreciate how the Ride community embraced our family from the beginning and look forward to volunteering every year,” she said.
For Saige, the 2023 Ride in Burlington, VT, stands out. “It was my longest distance ride yet at 78.6 miles! Also, riding in the pouring rain with other people with T1D was memorable.”
This year will be Saige’s third Ride. So far, Saige has ridden 172 miles and plans to increase that number by 100 this year!
Hope for the Future
Volunteering and fundraising for Breakthrough T1D gives the Merwin family hope. “I look at how much simpler it is for Saige to manage T1D now versus years ago,” Samantha said. “Breakthrough T1D’s research funding is our best chance for a better life for Saige.”
The Merwins are also fierce advocates for affordable insulin and know their efforts are making an impact. “The funding for Civica is so critical, especially now with the insulin shortages, which we have been personally impacted by,” Doug said.
Saige will head to college in the Fall of 2025 to study meteorology and get more involved with technology. Breakthrough T1D will be there every step of the way. “I won’t stop until we cross our ultimate finish line: cures.”
Register now for a 2024 Breakthrough T1D Ride!
Go the distance and register for a Team Breakthrough T1D event today!
Breakthrough T1D One World is a virtual world built for Roblox, the #1 online gaming platform for kids and teens. It’s a family-friendly place where people of all ages can get together, play games, and learn about type 1 diabetes (T1D). It features minigames like Trivia Tug of War and Parkour, educational booths to about T1D, and an exclusive V1P tent that you can get into by collecting coins around the world.
Breakthrough T1D One World is constantly transforming and expanding. A collaboration with Breakthrough T1D UK added landmarks like Big Ben, Stonehenge, and the Loch Ness Monster. Other newer features include a “Quest for the Golden Rufus” treasure hunt and even a Washington, D.C. side quest in honor of Breakthrough T1D Children’s Congress. With an 89% positive user rating on its latest game expansion, Breakthrough T1D One World is a hit!
Charity Walk Simulator
Nearly four years later, Breakthrough T1D One World has announced its biggest content update yet: Charity Walk Simulator. Breakthrough T1D One World’s newest game mode is a tycoon simulator that puts players in charge of their very own Breakthrough T1D One Walk.
Breakthrough T1D Game2Give Ambassador Toonafeesh with his son, Tiny Toona
The goal of Charity Walk Simulator is simple: players have to walk! Steps add up to earn players Blue Hearts, which can be used to build booths along the walkway, dress up avatars with fun accessories, and get power-ups. Charity Walk Simulator also has new non-player characters to chat with, trivia questions to answer, obstacle courses to master, and leaderboards where players can compete to accrue the most steps.
10-year-old Breakthrough T1D One World player Tiny Toona, diagnosed with T1D at age 4, likes all the opportunities to explore in the game. “I unlocked a holographic Game2Give logo that was my favorite,” he said.
“It’s really cool,” says 7-year-old Jack, who was diagnosed with T1D a little over a year ago. “It shows you that having T1D doesn’t stop you from doing fun types of activities!”
Meeting kids where they’re at
Kids today spend a more significant amount of time in virtual settings, whether it’s playing video games or remote learning. Breakthrough T1D’s One World meets kids with T1D where they’re at to provide a sense of community and connection.
Breakthrough T1D One World player Jack and his mom, Jordana
Jack’s mom, Jordana, believes Breakthrough T1D’s presence in Roblox helps her son feel more confident about living with type 1 diabetes. “I find it so wonderful that Roblox has provided a T1D-friendly platform for a game like Charity Walk Simulator,” she said. “I can’t think of a better way for Roblox to normalize T1D than having this kind of game.”
Toonafeesh, Tiny Toona’s dad and a Breakthrough T1D Game2Give Ambassador, views streaming and playing video games with his son as a unique way to make a difference. “Breakthrough T1D One World is a great tool to raise awareness and educate people who may not understand what having type 1 diabetes means,” he said.
A world that keeps growing
Breakthrough T1D has big plans for more One World expansions, including a virtual walk fundraising option.
“For those who cannot make it to a physical One Walk location, the participant can still fundraise and then get their steps in via Breakthrough T1D One World,” says Josh Larson, Breakthrough T1D Game2Give National Director.
These digital complements to in-person programs at Breakthrough T1D inspire and motivate the T1D and gaming communities.
“There is a lot of optimism regarding the work that Breakthrough T1D and so many others are doing,” Toonafeesh said. “Game2Give gives us an opportunity to keep pushing for a cure.”
Breakthrough T1D Game2Give® is building community, advancing research, and making a difference, one video game at a time. Get involved today at https://jdrfgame2give.org/.
Mike Haenni (back center) at his first Breakthrough T1D Walk (formerly JDRF One Walk) with Kayla’s mom, Trisha Yettke (far left)
Breakthrough T1D Walk (formerly JDRF One Walk) is more than a fundraiser, it’s a community. Meet two Walk team members who found support and inspiration in one another.
Mike: Living with T1D for 49 years
In the mid-1970s, Mike Haenni was diagnosed with type 1 diabetes (T1D) at the age of 26. The diagnosis came as a surprise, even though his father lived with the condition. “I erroneously believed I was immune because type 1 skipped generations,” Mike said.
His initial healthcare provider was a general family practitioner. He soon switched to more specialized care, where his T1D management improved…and continues to. “Initially, I checked my glucose through urine and tablets in a tube, then finger sticks,” he recalled. “Today, I do it using a continuous glucose monitor and pump.”
Kayla: Living with T1D for 19 Years
In the mid-2000s, Kayla Taszarek was diagnosed with T1D at the age of 10. The diagnosis came as a surprise, but her family was already very familiar with T1D. “I’d grown up with knowledge of type 1 diabetes because my mom was diagnosed in 1977,” she said.
Kayla has seen “drastic improvements” in her T1D care since her diagnosis, especially with automated insulin delivery systems. “There are still plenty of ups and downs and difficult days, but the safety features, more sleep, and more time-in-range have significantly impacted my quality of life,” she said.
A New T1D Champion
A few years ago, Kayla and her husband bought a house and got to know their neighbors—one of them was Mike! “My mother-in-law knew Mike and that he had T1D,” Kayla said. “She made that connection for us.”
Kayla, a development manager at Breakthrough T1D’s Kansas and Missouri Chapter, encouraged Mike to join the Breakthrough T1D Walk team she leads with her mom, Blondes with ‘Betes, so he could experience the huge local T1D support community. “Walk is our day for anyone and everyone to come together,” she said. “Whether you’re a child or an adult, you get to celebrate your strength and walk together towards a future without type 1 diabetes.”
Mike jumped right in and invited his daughter and son-in-law to join. He even joined the T1D parade as part of the 20+ Year Champions group. “I can’t think of a more impactful way to feel the energy of Walk,” Kayla said.
Mike is very thankful that Kayla showed him the incredible Walk community, and they’re both looking forward to walking in the coming years. “To feel the love and support of your community means everything, whether it’s your first Walk or your tenth,” Kayla said.
The Breakthrough T1D Walk accelerates research, powers advocacy, and provides support for everyone living with T1D. Registration is open now! Find your Walk at walk.BreakthroughT1D.org.
