In 1968, Dennis Goldensohn was a 16-year-old working at White Castle in Queens, NY. He started experiencing extreme thirst and tried quenching it with cola from the soda fountain. After a few weeks of on-and-off symptoms, he went to his family doctor. “He was the old Marcus Welby type of guy, with the rolled-up sleeves of a white Oxford shirt, wearing a tie and a stethoscope around his neck,” Dennis recalled. “And he told me to see an endocrinologist as soon as possible.”
At the endocrinologist, Dennis’ blood sugar was tested via urine test strips—the number was off the charts. The doctor said to his parents, “Your son has juvenile diabetes and will be on insulin shots for the rest of his life.” He gave Dennis a vial of pork insulin and some 24-gauge syringes, showed him how to inject it, and sent him home with a pat on the back.
The next day, when Dennis had to administer his first injection, he had a moment of resolve. “I said to myself, ‘This is not going to get in my way. This is not something that is going to be a roadblock’.”
That day began Dennis’s 57-year journey of living a full and healthy life with type 1 diabetes.
Applying lived experience to type 1 diabetes
Dennis worked in the manufacturing industry for over 40 years and has used that experience to better manage his type 1 diabetes.
“In manufacturing, I did statistical process control,” he said. “With T1D, it’s not control, it’s management. You manage diabetes, so the bandwidth of your time in range is narrow.”
He also takes a practical approach to what lies ahead. While he praises technology like CGMs and automated insulin delivery systems, those are not the end game for him.
“In lean manufacturing, the present is what we call the ‘current state.’ We don’t like the current state; we want the ideal state, which would be cures.”
Reducing T1D stigma in the workplace
Dennis is very passionate about reducing the stigma of type 1 diabetes in the workplace. He recalls times when he would need to inject insulin at professional meetings. “People would ask me, ‘What are you doing?’ and I would reply, ‘I’m diabetic, and this is what I do.’” His matter-of-fact approach encouraged others in the workplace to advocate for themselves.
In the 1980s, Dennis held “Lunch and Learn” sessions at his workplace to support his co-workers living with T1D. “My experience of one benefited 20 others,” he said. “If you’re a champion and a change agent, that makes all the difference.”
Giving back to the type 1 diabetes community
Since the 1970s, Dennis has been an avid advocate for our organization and the T1D community and has graciously volunteered as a photographer for his local Breakthrough T1D Walks, Community Summits, golf tournaments, and Galas.
He also deeply enjoys mentoring other people living with T1D, from the ages of 4 to 84. “I want to show them that everything can work out,” he said. “Everything is possible.”
Dennis encourages his fellow “type 1 diabetes veterans” to share their experiences and support with the T1D community. “It will benefit you and everyone else facing the condition. You have to give of yourself for yourself.”
Tips from a T1D veteran
Dennis is proud of his healthy life with type 1 diabetes and says there are a few important things that have helped him along the way:
- A positive attitude
“A positive mind leads to positive health outcomes.” - A deep understanding of T1D
“The more knowledge you have, the easier it is to manage because you have more answers.” - A supportive community
“Whether it’s your spouse, your sibling, or even your neighbor, a strong ‘nucleus’ is important for a healthy life.”
Dennis’s optimism continues to shine through in everything he does.
“At heart, I’m still a kid from Brooklyn,” he said. “I still feel like I’m 16 years old and can play stickball and sing doo-wop harmony on the street corner. I’m going to be here forever—that’s my attitude. Type 1 diabetes is still not getting in my way!”
The Breakthrough T1D Real Estate Games is an annual event sponsored by the Washington, D.C.-area commercial real estate community to benefit type 1 diabetes (T1D) research. Founded in 1990 by Adam Singer, Vice Chairman of longtime Breakthrough T1D partner Savills, Inc., the Games have evolved into one of the real estate industry’s top events of the year.
A dynamic volunteer partner
Adam Singer was diagnosed with T1D in 1978 at the age of 18 and became involved with Breakthrough T1D’s chapter in Philadelphia shortly thereafter. While a student at The University of Pennsylvania, Adam started T1D support groups in more than 30 cities. He was a member of Breakthrough T1D’s International Board of Directors (IBOD) from 1982 to 1985, the youngest in Breakthrough T1D’s history. Adam is a long-time advocate, gala honoree, and former board chair for Breakthrough T1D’s Mid-Atlantic Chapter. He currently serves as a Director Emeritus of the IBOD.
Cultivating relationships to advance our mission
One of Adam’s most significant contributions to our mission is founding the Breakthrough T1D Real Estate Games. This annual day of Olympic-style competitions features real estate company teams competing against each other in “friendly” tournaments of 3-on-3 basketball, volleyball, tug-of-war, and more. Adam’s legacy continues to grow as Breakthrough T1D expanded the Games to New York City, Chicago, and, in 2025, Atlanta.
Over the past 30 years, the Games have raised more than $15 million for T1D research. This novel event showcases Adam’s ability to develop relationships, connect people to Breakthrough T1D’s mission, and drive fundraising.
Leadership in innovation
In 2023, Adam received the Breakthrough T1D John Brady Award for Innovation, which recognizes an outstanding volunteer who has exhibited leadership in driving innovation and pioneering projects with the potential to meaningfully impact the T1D community.
“Adam is a true type 1 diabetes champion,” said Aaron J. Kowalski, Ph.D., Breakthrough T1D CEO. “His innovative thinking and engagement of the commercial real estate community have created a longstanding tradition that has not only raised significant funds for life-changing research, but also demonstrated the power of volunteer leaders in moving us toward cures.”
Learn more about the 2025 Breakthrough T1D Real Estate Games:
Pictured above: Pat McFeeley (number 407) with fellow Rider Teresa Switzer at the 2024 Breakthrough T1D Ride in Coeur d’Alene, Idaho
You’d be hard-pressed to find someone more dedicated to Breakthrough T1D’s mission than Pat McFeeley.
After his twin daughters were diagnosed with type 1 diabetes (T1D) over 26 years ago at ages 1 ½ and 2 ½, Pat and his wife went all-in on fundraising and awareness-building. Since then, he has seen the direct impact of his efforts.
“The changes have been enormous since my daughters were diagnosed,” he said. “The disease has become far more manageable—it allows them to think about everyday life instead of always thinking about their blood sugar.”
But T1D is still something to manage. And Pat is doing everything he can to change that.
A volunteer and fundraising superstar
Pat has served in a tremendous number of volunteer roles at Breakthrough T1D over the years, including Ride champion, Speaker’s Bureau member, Gala honoree, Gala chair, chapter board member, chapter board president, International Board of Directors member, chancellor, Ride coach, and Walk team captain.
And his dedication doesn’t stop at volunteering.
Pat hosts an annual fundraiser in his backyard that draws hundreds of new supporters each year. He fills multiple tables at his chapter’s Gala every year and has raised millions of dollars through sponsorships and Fund a Cure. His Walk team, the McFeeley Marchers, would often raise over $100,000 in a single year.
He accomplishes this all by aiming high and seeing the ripple effect one dedicated person can create.
“I do a lot of speaking for Breakthrough T1D around the country,” he said. “One of the things that I tell all of my audiences is ‘think big.’ An individual can have an enormous impact.”
Ride: The spirit of the T1D community
For Pat, the spirit and camaraderie at Breakthrough T1D Ride is second to none. “The mission is front and center the whole weekend,” he said. “It’s clear that when we all get on our bikes, it’s to find a cure for type 1 diabetes.”
Recently, Breakthrough T1D’s North Carolina chapter wanted to grow its Ride program participation. Pat answered the call. He led a recruitment campaign in which he donated $250 to every new rider, returning rider, or rider who upgraded their fundraising package.
He also recruited George Hincapie, the most well-known American cyclist and 17-time Tour de France participant, to participate in the 2023 Breakthrough T1D Ride in Amelia Island. His efforts not only increased awareness of the Ride program but also resulted in more participants and more money raised.
Pat will continue to harness the energy of Breakthrough T1D Ride to support our mission of improving the lives of people with T1D until we find cures.
“To me, Ride is a great example of bringing together relationships and experiences and making a difference in the world for people living with T1D all at once,” he said. “I think those are some of the most important things in life.”
Breakthrough T1D 2025 Ride registration is now open!
Register to join us at the Breakthrough T1D Coeur d’Alene Ride September 25-28.
The “who” of clinical trials
People with type 1 diabetes (T1D) who choose to participate in clinical trials are central to determining whether a new treatment is effective and safe. Yet have you ever wondered who operates behind the scenes of clinical trials?
There are scientists that have researched a new drug or device for years, sometimes decades. There are healthcare professionals (HCPs) that oversee the trial at each location, administer treatments, and monitor participants’ health. There are study coordinators that manage the volunteers. There are pharmacologists, biostatisticians, ethicists, writers, and countless others who analyze and publish the data for the scientific community. It takes a village!
Focus on Hassenfeld Children’s Hospital at NYU Langone
The Pediatric Diabetes Center at Hassenfeld Children’s Hospital at NYU Langone is part of the world-renowned NYU Langone Health system, which also has adult programs for diabetes. Diamyd Medical specifically chose NYU Langone as a trial site for DIAGNODE-3.
DIAGNODE-3 is a Breakthrough T1D-funded phase 3 clinical trial of the disease-modifying therapy Diamyd®. The goal is to preserve as many healthy beta cells as possible to maintain the body’s own insulin production.
The team at Hassenfeld Children’s Hospital managing DIAGNODE-3 is led by Mary Pat Gallagher, MD, the Principal Investigator, Director of the Pediatric Diabetes Center, and associate professor in the Department of Pediatrics at NYU Grossman School of Medicine. With many years of experience under her belt, she has been involved in previous clinical trials for Diamyd®, making her a perfect fit for this final stage of testing.
The team also includes pediatric endocrinologist Dr. Casey Berman, the Sub-Investigator, in addition to Jeniece Ilkowitz, RN, CDCES, and Aashna Shah, who are the study coordinators.
I have a personal and family connection to T1D, and research allows me to have both an impact on the greater community as well as individuals.”
Managing T1D is a team effort—the clinical researchers behind the scenes want to make the process as smooth as possible for those who choose to participate in trials.
“We have a wonderful research team with people who also live with diabetes,” Jeniece continued. “You will receive extra support as you learn to live with your new diagnosis, as we will support you as well as communicate with your primary diabetes provider.”
A deeper dive into the science
Diamyd® is an immune modulator that prevents attack on the body’s insulin-producing beta cells by reprogramming the immune system to ignore GAD (glutamic acid decarboxylase). In T1D, GAD can give rise to autoantibodies, which tell the immune system to destroy beta cells.
This therapy is targeted toward people with newly diagnosed T1D who also have the genetic marker associated with GAD —about 40% of the T1D population.
Diamyd® works by injecting GAD directly into lymph nodes, where immune cells live until they’re needed. If certain types of immune cells are exposed to GAD over and over again, they eventually become tolerant and stop destroying the beta cells.
DIAGNODE-3: The phase 3 trial
Researchers are now testing Diamyd® in phase 3 clinical trials (DIAGNODE-3), the final step before seeking approval from the U.S. Food and Drug Administration (FDA). Results from previous trials have been so promising that Diamyd® has received Fast Track Designation and Orphan Designation from the FDA, solidifying it as a potentially life-changing disease-modifying therapy for newly diagnosed T1D.
To participate in DIAGNODE-3, you must be between 12-28 years old and have been diagnosed with stage 3 T1D within the last six months, meaning you have symptoms associated with high blood sugar and require insulin therapy. You also must test positive for a specific genetic marker (HLA DR3-DQ2) to participate.
Over a two-month period, participants will receive three ultrasound-guided injections into a lymph node located in the groin, followed by a 22-month follow-up. A topical anesthetic can be used as required. While a mild reaction at the injection site (itching, redness, etc.) is expected, to date none of the participants in all the trial phases has discontinued treatment due to injection issues.
For every two participants receiving Diamyd®, one will receive a placebo (a treatment with no therapeutic effect for comparison). Researchers will measure C-peptide, a lab test that shows a person can still produce their own insulin, in addition to HbA1c and continuous glucose monitor (CGM) data to determine whether the drug is working. Based on previous trials, researchers predict that Diamyd® will significantly improve blood glucose management, reduce risk of complications, and overall increase quality of life.
We need your help—get involved!
Clinical trials are critical to get new medicines from the lab into the clinic in a safe and effective way. We know that trials are daunting—signing up to receive a treatment that’s still under investigation can be a difficult decision. Yet, if you choose to participate in a clinical trial, you can have access to new therapies and knowledgeable clinicians, learn more about T1D, and benefit the broader T1D community. Also, because there are only 13 DIAGNODE-3 clinics in the U.S., you may be eligible to receive travel reimbursement.
Meet the team and get screened!
Still feeling unsure? Jeniece, one of the study coordinators at Hassenfeld Children’s Hospital at NYU Langone, suggests starting simple.
“As you wait for the results, you can speak to family and friends with the added knowledge as well as think about your life and how this can fit into it,” she explained. “We truly want to help people living with diabetes and be able to have as many options as possible to help them manage their disease in the future.”
Learn more about DIAGNODE-3 by visiting the study’s website. While there are 60 clinic locations in the U.S. and Europe and more than 200 people with T1D enrolled so far, only one person has enrolled at NYU Langone. If you or anyone you know in the NY Metro Area would be interested in participating, please contact the research team at NYU to learn how to get involved. They are recruiting throughout 2025.
Breakthrough T1D’s role
A pillar of Breakthrough T1D’s Cures Program is disease-modifying therapies: those that can slow, halt, or reverse the course of T1D, such as Diamyd®. These interventions are most impactful at the earlier stages of T1D with the hopes of preserving as many beta cells as possible so that the body can produce its own insulin.
Breakthrough T1D’s funding of the DIAGNODE-3 clinical trial aligns with our dedication to early detection and screening. Identifying the presence of T1D autoantibodies as early as possible allows for a larger window of intervention and increases the chances of preserving healthy beta cells with disease-modifying therapies. While DIAGNODE-3 is the first therapy to target a specific genetic subpopulation of T1D, we anticipate that it won’t be the last, which underscores the importance of getting screened to understand your genetic T1D background.
DIAGNODE-3 is just one of the many different clinical trials that Breakthrough T1D funds.
To promote education and awareness of clinical trials, Breakthrough T1D has assembled a group of Clinical Trial Education Volunteers (CTEVs) who engage with the T1D community.
One CTEV, Alecia Wesner, used her expertise and personal experience with T1D to connect Diamyd Medical, the NYU Pediatric Diabetes Center, the Breakthrough T1D NY Metro Chapter, and Breakthrough T1D National, bringing together critical players who can facilitate participation and spread the word about the DIAGNODE-3 clinical trial.
Without people like Alecia, getting the message out about potentially life-changing trials would be far more difficult. We thank Alecia for her efforts and the clinical trial participants of the T1D community for moving science forward for the benefit of all.
The leadership, staff, and volunteers of Breakthrough T1D mourn the tragic, sudden loss of five type 1 diabetes (T1D) champions on Friday, Nov. 1, 2024.
That night, five people who were pillars of the Breakthrough T1D Ride community died in a tragic, single-car accident.
The group included two married couples and one single individual—all very close friends and veteran Breakthrough T1D Ride participants.
All five people were inside the vehicle at the time of the accident—no one was riding a bicycle at the time.
The greatest group of people you wish you didn’t need to know
Understandably, the tragedy sent shockwaves through the tight-knit Ride community, as well as the entire Breakthrough T1D organization.
Chris Eaton, a lead volunteer partner of Breakthrough T1D Ride and the Ride Advisory Council, knew all five people well.
“It’s said, ‘Ride is the greatest group of people you wish you didn’t need to know.’ Our friends embodied that feeling of inclusion, hope, and a steadfast focus on getting to a cure,” said Chris. “They will be sorely missed by their family, friends, and the Ride community.”
Jeff and Michelle Bauer
Jeff and Michelle Bauer were highly involved in Breakthrough T1D Ride—especially Michelle.
“The Breakthrough T1D Ride program is a family, and Michelle exemplified this day in and day out,” said Anthony Geraci, National Director, Ride & Endurance.”
Michelle had been a dedicated T1D advocate since her son, Jesse Alswager, was diagnosed with type 1 diabetes in 2000 at the age of 3. Tragically and unexpectedly, Jesse passed away at the age of 13 on February 3, 2010.
After Jesse passed away, Michelle continued to advocate, educate, and push the envelope in his name. In honor of Jesse, the date he died—and generally all people who have passed away from T1D—Mile 23 of each Breakthrough T1D Ride is ridden in silence.
“Whether it was riding thousands of miles in memory of her late son Jesse, authoring a book to help grieving families, bringing her husband Jeff Bauer into the Ride family, to joining the Ride Advisory Council, Michelle was all in,” added Anthony.
In her spare time, Michelle had numerous other T1D-focused projects, including “Jesse Was Here,” which encompassed her work with other families around the world who had lost loved ones to T1D.
Jeff proposed to Michelle in 2018 at Mile 23 of a Breakthrough T1D Ride.
The couple had a lake house in Crandon, Wisconsin, and spent a lot of time there. They were avid boaters.
Jeff and Michelle are survived by their blended family of five children—Alexander Bauer, Claudia Bauer, Samantha Alswager, Joseph Alswager and Sara Alswager—all of whom are now adults.
Learn more about Jeff and Michelle and how to honor their lives.
“When I mentioned to Michelle off the cuff that I was thinking about completing my first Ironman, she was the first to offer up being my coach and cheerleader. The last text message I got from Michelle was on Wednesday of last week simply saying ‘Did you do it yet??’ That’s how I’ll remember Michelle. Always pushing people to be their best. Always pushing herself to be her best.”
Anthony Geraci
National Director, Breakthrough T1D Ride and Endurance
Josh and Tammy Stahl
Josh and Tammy Stahl became close friends with the Bauers through the Ride program. They rode together most recently in La Crosse last August.
Josh started riding in 2011 for his and Tammy’s son, Gavin (now 17 years old) who lives with T1D. Josh had competed in 13 rides including, Lake Tahoe, La Crosse, and Death Valley.
“I’ve been fortunate enough to talk to Josh and Tammy at rides for over a decade,” said Dan Woolf, Executive Director of Breakthrough T1D’s Wisconsin Chapter who has long been involved with Ride. “Most recently in La Crosse, where we traded stories of our spirit jerseys, kids, and what makes the Ride program special, which are the friends you make along the way.”
Josh and Tammy are survived by their sons Gavin Stahl and Blake Stahl.
Learn more about Josh and Tammy and how to honor their lives.
“The Stahls were the perfect example of that incredible spirit.They became close friends with so many people from all over the country while making such a difference for our Ride community, which is truly inspiring to me. It’s something that I’ll never forget and a testament to what wonderful people they were.”
Dan Woolf
Executive Director, Breakthrough T1D Wisconsin Chapter
Barry Sievers
Barry’s first Ride was 10 years ago. He had completed five rides including La Crosse, Nashville, and Loveland.
While he had no direct T1D connection, he was always willing to help with a smile. He hosted training rides at his house and even helped transport bikes with his trailer.
“Barry’s infectious smile and boundless energy embodied our Team Wisconsin spirit,” wrote Joe Brady and Scott Hagen in a statement they issued together.
Joe lives with T1D and is a veteran Ride coach. Scott is Barry’s best friend who recruited him for his first ride a decade ago.
Barry was the Senior Financial Manager for the Institute for Clinical and Translational Research at the University of Wisconsin—Madison.
Barry is survived by his adult son, David T. Sievers, and two school-age daughters, Emma Sievers and Addison Sievers.
Learn more about Barry and how to honor his life.
“Whether opening his home for summer training rides, spinning tales on the team bus to Nashville, or cheering on the last rider at the Loveland finish line, Barry brought joy and camaraderie to every moment. Always ready with a solution to any bike issue, his ‘can do’ attitude inspired us all to push harder, fundraise better, and pedal faster toward our goals. Barry’s good-natured warmth and easy laughter will forever be cherished and missed.”
Statement from Joe Brady and Scott Hagen
Against many headwinds
“Greg Lemond, winner of the Tour de France, once said about cycling: ‘It doesn’t get easier, you just go faster,’” said Chris Eaton.
“Against many headwinds, this group of friends led a community that embodies the imperative that we can, and will, cure type 1 diabetes despite the challenges. They will be missed.”
By Margaret Kelley
Twelve years ago, my husband Jonathan participated in the Breakthrough T1D Ride in Death Valley. It was meant to be a one-time commitment—a physical challenge for a good cause.
Fast-forward to three years ago: our son Edgar was diagnosed with type 1 diabetes (T1D) at age 11. Our world turned upside down. A few months after his diagnosis, a friend from the T1D community reached out and recommended we get in touch with their local Breakthrough T1D chapter. From that point on, we involved ourselves in Breakthrough T1D in what I can only describe as “every way possible.”
Our family has participated in One Walk, Ride, the Chicago Marathon as part of Team Breakthrough T1D, Children’s Congress, the Youth Ambassador Program, Galas, TypeOneNation Summits, and more. We have also added Breakthrough T1D to our estate planning. Dollars drive research, research drives a cure, and a cure will benefit our son, as well as the millions of other people affected by T1D.
Miles for a Cause
After Edgar’s diagnosis, my husband heard from some other parents how meaningful the Ride was. We had just bought a new Peloton, and it felt like the perfect way to direct those miles toward a cause.
Jonathan then spent the next year training for the race and fundraising for Breakthrough T1D. He connected with a new local friend whose daughter had T1D, and they made plans to ride together. We attended the Ride as a family this past September. We were deeply moved and energized by the incredible community, the money it had raised, and the athletic accomplishments of rider after rider crossing the finish line.
The Magic of Team Breakthrough T1D
The day after Edgar’s diagnosis, Jonathan’s sister asked if she could run the Chicago Marathon for Breakthrough T1D in Edgar’s honor. She then proceeded to raise over $20,000. After watching her experience, I knew I wanted to do the same thing. I signed up for the 2023 Chicago Marathon as a Breakthrough T1D runner and trained for a year, connecting with other Breakthrough T1D runners, fundraising, and doing whatever it took to get to the starting line.
There were so many hot mornings when I’d been up several times the night before with diabetes alarms. I didn’t know how I was going to finish my run, but I would tell myself, “If Edgar can do what he needs to do, I can do what I need to do.” I ended more than a few long runs in tears, exhausted and emotional from the task.
The race itself was unbelievable. Family and friends cheered me along the way, and Edgar joined me at mile 21 and ran with me until mile 25 (pictured above). I had planned to dedicate my mile 23 to the people who have lost their lives to T1D, a tradition from Breakthrough T1D Ride. The fact that my beautiful, healthy son was running next to me for that mile was not lost on me. Those last few miles, which so many people say are the worst of a marathon, were my most joyful and uplifting.
Our family, including grandparents, aunts, and uncles, have completed 852 miles for Breakthrough T1D through Ride and Team Breakthrough T1D. There is magic in running for Team Breakthrough T1D, and I can’t imagine running in any other way.
Why We Keep Going
Breakthrough T1D is everything to our family. Breakthrough T1D has given us technology, tools, medicine, and community. It is why there are fewer long-term health complications than ever before. It is why we can send our son on two-week-long outdoor trips with his class, knowing that he has the equipment to keep himself comfortable and safe. And it is why whenever we need a resource, connection, or new friendship, we can find one.
Breakthrough T1D means the world to Edgar, too. He says, “It has brought so much into my life, like community, opportunities like Children’s Congress, and hope. I can’t imagine having T1D without those things because I would feel alone and like my life wouldn’t get any better.”
Breakthrough T1D is also why we have hope for a cure. They have an incredible team of experts making both specific and broad decisions to eventually find a cure for type 1 diabetes. When the day comes that our son can take the devices off his body and stop filling his prescription for insulin, it will be because of Breakthrough T1D.
Team Breakthrough T1D provides entry into some of the country’s most exciting and challenging fitness events. Find an event now!
L-R: Saige, Samantha, and Doug Merwin at the 2022 Breakthrough T1D Ride in Saratoga Springs, NY
After their child, Saige, was diagnosed with type 1 diabetes (T1D) at 17 months old, Doug and Samantha Merwin turned to Breakthrough T1D for support.
There, they found their purpose.
First, the Merwin family joined One Walk, which inspired them to get more involved. They helped set up local T1D playgroups and worked with other parent advocates to create a local Facebook parent group, now almost 700 parents strong! Years later, Samantha worked closely with their chapter to help establish consistent community events. “My goal was—and still is—that no family should feel isolated at diagnosis,” Samantha said.
Their work with Breakthrough T1D continued to expand to include advocacy and participation on their community board, where Samantha is currently starting her third term as community engagement lead. “People often think I work at Breakthrough T1D since I volunteer at everything,” she said. “But I just do what is needed to support the T1D community.” In addition, Saige has served as a Youth Ambassador, a Breakthrough T1D Children’s Congress Delegate, and a volunteer at countless local Breakthrough T1D events.
In honor of Saige’s 10-year diaversary, the Merwins decided to participate in Walk, Ride, and Team Breakthrough T1D…all in the same year! The rest, they say, is history.
Tenacity for T1D
Saige and Samantha at the 2017 RunDisney Marathon Weekend 5K as part of Team Breakthrough T1D
Saige and Samantha started running together with Team Breakthrough T1D in 2016. “It’s such a special weekend,” Samantha said. “I love the energy, the commitment of the runners, and, of course, standing in the corrals at 3:30 a.m. waiting for the race to start.” To date, Saige and Samantha have run over 70 miles for Breakthrough T1D.
The Merwins started a fundraiser for Team Breakthrough T1D that has now carried over to Ride: they write the names of all their donors on their legs for the event. “When the ride or run gets hard, we tell them we will look down and remember that we are participating for everyone in the community, not just our family,” Samantha said.
Doug and Saige with donor names written on their legs for inspiration
Their journey with Breakthrough T1D Ride began in 2017 in Saratoga Springs, where Samantha and Saige volunteered at the finish line. It became their standard volunteer post, including the following year, when Samantha and Doug planned something special. “Saige thought Doug was working and couldn’t volunteer with us,” Samantha said. “It was a huge surprise when he crossed the finish line!”
Saige started riding with Doug in 2022. That year’s Ride held a special meaning for Samantha—she was able to put a medal around both her husband’s and child’s necks after they crossed the finish line. She was also awarded the Volunteer Dedication Jersey, which was incredibly humbling. “I truly appreciate how the Ride community embraced our family from the beginning and look forward to volunteering every year,” she said.
For Saige, the 2023 Ride in Burlington, VT, stands out. “It was my longest distance ride yet at 78.6 miles! Also, riding in the pouring rain with other people with T1D was memorable.”
This year will be Saige’s third Ride. So far, Saige has ridden 172 miles and plans to increase that number by 100 this year!
Hope for the Future
Volunteering and fundraising for Breakthrough T1D gives the Merwin family hope. “I look at how much simpler it is for Saige to manage T1D now versus years ago,” Samantha said. “Breakthrough T1D’s research funding is our best chance for a better life for Saige.”
The Merwins are also fierce advocates for affordable insulin and know their efforts are making an impact. “The funding for Civica is so critical, especially now with the insulin shortages, which we have been personally impacted by,” Doug said.
Saige will head to college in the Fall of 2025 to study meteorology and get more involved with technology. Breakthrough T1D will be there every step of the way. “I won’t stop until we cross our ultimate finish line: cures.”
Register now for a 2024 Breakthrough T1D Ride!
Go the distance and register for a Team Breakthrough T1D event today!
L-R: Matt Varey, Martin Thibodeau, Royal Bank of Canada Regional President, British Columbia, and Dave Prowten, former Breakthrough T1D Canada President and CEO
Matt Varey, the newly elected Vice Chair of the Breakthrough T1D International Board of Directors (IBOD), brings a global voice as the first Canadian and the first person outside of the U.S. to serve in the role.
Matt, a senior executive at the Royal Bank of Canada (RBC), began volunteering with Breakthrough T1D Canada in 2001. Since then, he has served on Breakthrough T1D’s International Board of Directors and as Chair of the Board of Breakthrough T1D Canada.
He resides with his wife, Dr. Andrea Jack, in Oakville, Ontario, Canada.
Breakthrough T1D sat down with Matt to learn more about his volunteer journey and unique global perspective.
What led you to start volunteering for Breakthrough T1D?
In 2001, I returned to Canada from professional commitments abroad and witnessed colleagues and personal friends whose lives were affected by type 1 diabetes (T1D). I couldn’t just stand by and watch; I had to do anything I could to support them—not just on a personal level but also in a broader capacity. At that time, RBC started a coast-to-coast initiative with Breakthrough T1D Canada, and I recognized I had new ways to make a difference. That started this purposeful journey I have been on with Breakthrough T1D.
What are some of the roles have you had within the organization?
My first involvement with Breakthrough T1D was as a rider in the 2001 Breakthrough T1D Toronto Ride for a Cure. That led to my joining the Toronto Ride cabinet with other business leaders and, later, my becoming Chair of the Breakthrough T1D Ride.
In 2008, I was appointed a Board Member of Breakthrough T1D Canada. From 2014 to 2016, I served as the Chair of Breakthrough T1D Canada. To this date, I remain on the Board of Breakthrough T1D Canada, having taken on different mandates, including Chair of the Audit and Risk Committee and Chair of the Investment Committee.
Since 2016, I have been a Board member of Breakthrough T1D International, serving in various capacities, including member of the Breakthrough T1D International Finance Committee and Chair of the Breakthrough T1D International Audit and Risk Committee.
Do any of your experiences at Breakthrough T1D Canada stand out?
Every moment supporting this meaningful mission is special, and one of the highlights was my role as Chair of Breakthrough T1D Canada from 2014 to 2016. I was directly involved in the purposeful journey of making a difference for over 350,000 Canadians living with T1D, stewarding this cause for Breakthrough T1D Canada as a Canadian. In 2017, in conjunction with the CHIR (Canadian Health Institute Research) and our incredible team under the leadership of former President and CEO of Breakthrough T1D Canada Dave Prowten, we secured a 30-million grant from the Government of Canada to support Breakthrough T1D research and scholastic advancements in Canada.
Do you feel you will offer a unique perspective to IBOD as a person who lives in Canada?
Breakthrough T1D is a global organization on a journey of purpose. I’m excited and grateful to extend the reach of that journey. Canada is world-renowned for diabetes research and breakthroughs—the first genetically engineered human insulin was discovered and manufactured in Canada, after all! It is the responsibility of all Canadians to carry that flame of innovation and discovery, so I feel even more of an obligation as a Canadian on the Breakthrough T1D IBOD to carry that baton forward.
Why are volunteers so essential to our mission?
Grassroots volunteering is empowering and essential to the success of all nonprofit organizations. Breakthrough T1D volunteers keep us close to the cause and the people impacted by the disease—their care, passion, and dedication will help spread our purpose across the globe.
What does the future of T1D look like to you?
We have seen so much progress in recent years, and it will continue at an even faster pace. Cell therapies are an exciting focus area for Breakthrough T1D. I’m eager to see where that research takes us, particularly eliminating the need for immunosuppressant drugs.
Clinical trials show the possibilities for disease-modifying therapies to preserve beta cell function in people newly diagnosed with T1D. Today, we can delay the onset of T1D, and I’m confident tomorrow, we’ll be able to stop it! Scientists are finding ways to make insulin work smarter and work in conjunction with other drugs for better and safer disease management. There are so many ways Breakthrough T1D is improving the lives of people with T1D—treatments and therapies will continue to advance until we reach our ultimate goal: cures.
What does the future of Breakthrough T1D look like to you?
We are purposefully seeking opportunities for Breakthrough T1D to achieve more breakthrough research and facilitate diabetes education and knowledge globally. As an organization with a global reach, it is our responsibility to enable more access to research, education, and awareness in every corner of the world to help everyone understand the disease, navigate it, and support those impacted by it.
L-R: Neil, Perry, Sydney, Harris, and Lisa Wallack
Lisa F. Wallack is the newly elected Chair of the Breakthrough T1D International Board of Directors (IBOD). Her appointment holds distinction: she is the first Chair to have a parent previously serve in the role.
Lisa’s involvement with Breakthrough T1D started in the early 1970s after her younger brother, Scott, was diagnosed with type 1 diabetes (T1D) in 1969 at the age of 18 months. Lisa’s parents, Marilyn and Gerald Fishbone, were among the founders of Breakthrough T1D (then known as “JDF”) in the early 1970s, and her late father served as IBOD Chair from 1983 to 1986. Her passion for T1D advocacy was amplified when her son, Harris, was diagnosed in 2001 at the age of 5.
Lisa is a force at Breakthrough T1D, having served in nearly every volunteer leadership role locally, nationally, and internationally. She was President of the Greater New England Chapter and has been a member of Breakthrough T1D’s IBOD for nine years, helping with governance, strategy, and fundraising. Her leadership efforts were recognized in 2019 with the Jim Tyree Chairman’s Award, and Lisa and her husband, Neil, are being honored at the Breakthrough T1D Greater New England Chapter 2024 Gala for their unwavering dedication to the T1D community.
Breakthrough T1D sat down with Lisa to discuss carrying on her family’s legacy of volunteerism and her hopes for the organization’s future.
Your appointment as the new Breakthrough T1D IBOD Chair must feel like a full-circle moment since your father served in the role more than 30 years ago. How did your parents inspire you to be a leader, and what do you hope to carry on from them?
I grew up watching my parents devote countless hours to building this organization to engage other people impacted by T1D, build a community to support one another, and inspire and enable them to work together to raise awareness and funds to invest in type 1 diabetes cures.
My mom, who founded Breakthrough T1D’s New Haven Chapter and remains an active champion today, has modeled for me how to be an authentic and successful fundraiser driven by our passion to cure our loved ones and the millions of others whose lives have been impacted by T1D.
People say my father always made everyone feel like the most important person in the room. He has inspired me to be a strong but humble leader, to listen to others, and to work to bring out the best in them.
You have extensive experience working with many non-profit boards. What unique perspectives do you hope to bring to the IBOD as a female leader?
Women bring to the table a willingness to listen and collaborate without letting their egos drive the agenda. I want to engage the diverse perspectives of our T1D community and work together to leverage our experiences, insights, and networks to grow Breakthrough T1D’s reach and impact.
What opportunities lie ahead for Breakthrough T1D and the T1D community?
I see Breakthrough T1D being more reflective of the diverse community of those impacted with T1D, engaging people of all ages and stages of life with T1D from different communities around the U.S. and worldwide.
Ninety percent of those living with T1D are adults. We need to show the adult T1D community that we are relevant to them, to demonstrate the role that Breakthrough T1D has played in improving their lives, and to engage them in our quest to conquer the disease for good. We also need to look beyond the United States to strategically engage donors and governments to invest resources in Breakthrough T1D and our mission to accelerate our progress.
You have served in nearly every volunteer role possible at Breakthrough T1D. Do any roles stand out to you?
Lisa and her husband Neil, who together have raised over $1.4 million for T1D research
I really enjoy the work I have done at our local Breakthrough T1D chapter, reaching out to newly diagnosed families and introducing them to the Breakthrough T1D community and the progress that we are making.
I’m a passionate fundraiser, asking everyone we know to support Breakthrough T1D each year. My husband Neil’s participation in marathons, Breakthrough T1D Rides, and Ironman competitions inspired many others to support our cause. To date, we have raised over $1.4 million from our efforts!
I enjoyed my many roles on the Breakthrough T1D IBOD, from ensuring our governance structure is as effective and efficient as possible to working with our extraordinary professional leadership team to develop and implement the most impactful strategy to accelerate our mission.
How do you hope to inspire the Breakthrough T1D volunteer community in your new role?
Volunteers are the key to Breakthrough T1D’s success. We are the army that raises the funds needed to achieve our mission goals. We are a community that supports one another, sharing learnings and experiences to help others cope and engage them in our shared fight.
Learning from my parents, I have always valued volunteerism as a way to have an impact and to find fulfillment. Leaning in as a volunteer at Breakthrough T1D has given me a sense of empowerment and the strength, resilience, and hope to know that together we can conquer T1D. Being part of this amazing community and this impactful organization is deeply meaningful and inspiring.
Being involved with Breakthrough T1D for nearly 50 years gives you a unique perspective. How does living with T1D differ from the past to the present? What do you think it will look like in the future?
Lisa and her brother Scott, who has lived with T1D for over 50 years
Breakthrough T1D’s strategic leadership has led to the many advances that have made it safer and easier to live with T1D. When my brother was diagnosed in 1969, there was only urine testing and syringes and no blood sugar testing or insulin pump technology. Today, we have CGMs and closed-loop insulin delivery systems that have reduced the burden of living with T1D for Scott and Harris, as well as for Neil and me as caregivers.
I look forward to the day that Scott, Harris, and everyone with T1D will not need to depend on technology to live. I feel that day is getting ever closer as we drive the development of new disease-modifying and cell therapies that will enable us to prevent and cure T1D.
Lisa Fishbone Wallack, an attorney by training and long-time volunteer leader in the greater New England area, will serve as Breakthrough T1D International Board of Directors (IBOD) Chair, succeeding current Chair Grant Beard. Matt Varey, a senior executive at Royal Bank of Canada (RBC) and dedicated volunteer leader in the greater Toronto, Canada, area, will serve as Breakthrough T1D IBOD Vice Chair, succeeding current Vice Chair Michelle Griffin.
Lisa’s and Matt’s terms as Chair and Vice Chair, respectively, begin Monday, July 1, 2024.
Lisa Fishbone Wallack Continues Family’s Legacy of Championing Breakthrough T1D’s Mission
Lisa is a long-time volunteer leader of Breakthrough T1D’s Greater New England Chapter, first getting involved with Breakthrough T1D when her parents Marilyn and Dr. Gerald Fishbone were among the founders of Breakthrough T1D (then known as “JDF”) after her brother Scott was diagnosed with T1D in 1969 at the age of 18 months, and then increasing her involvement after her son Harris was diagnosed in 2001 at the age of 5.
Locally, Lisa has served as President of the Greater New England Chapter Board and remains active with the chapter. Nationally, she has been a member of the IBOD for nine years and has served as Vice Chair of the IBOD, as Chair of the Talent and Compensation Committee, and as Chair of the Nominating and Governance Committee.
Lisa is an attorney by training and is a volunteer leader at numerous other community organizations, leading annual, capital, and comprehensive campaigns and strategic committees.
Lisa and her husband Neil are proud to be leadership donors to Breakthrough T1D as well as donors to Breakthrough T1D’s T1D Fund. She and her family participate in all Breakthrough T1D programs, including the Walk and Gala, and she supports Neil’s participation in endurance events including the Boston Marathon, the Breakthrough T1D Ride program, and Ironman Triathlons, which collectively have raised more than $1.4 million for Breakthrough T1D.
For their outstanding and continued support of Breakthrough T1D, Lisa and Neil will be honored at the Greater New England Chapter’s Gala on Saturday, April 6.
Lisa graduated with a B.A. in The Biological Basis of Behavior from the University of Pennsylvania and with a J.D., summa cum laude, from the Benjamin N. Cardozo School of Law. In addition to their son Harris, Lisa and Neil have a son Perry and a daughter Sydney. They live in Weston, Massachusetts.
Matt Varey Leads and Engages Breakthrough T1D’s T1D Community
Matt Varey is currently a senior executive at Royal Bank of Canada (RBC)—the largest financial institution in Canada and one of the largest and most trusted in the world.
As Senior Vice President, Matt is responsible for national leadership of more than 4,500 Canada-based employees entrusted with important client life events including personal investments, mortgage financing and group benefits, totaling more than $100 billion of human trust annually. Prior to joining RBC in 1987 and taking on a wide range of senior management and executive positions within RBC, Matt was Vice President and General Manager of RBC Suisse, RBC’s Global Private Banking operations in Geneva, Switzerland.
Matt is an ardent supporter of Breakthrough T1D’s commitment to improving the lives of every person living with T1D and driving breakthroughs to cure the condition. His association and commitment to Breakthrough T1D started in 2001 and he currently serves on the Breakthrough T1D International Board of Directors and Breakthrough T1D Canada Board of Directors. His diverse international leadership experience will be instrumental in continuing Breakthrough T1D’s purposeful global mission and navigating the organization’s path forward in partnership with his Breakthrough T1D Board of Directors colleagues.
His previous Board responsibilities included Chair of the Board of Breakthrough T1D Canada and Board member of the Mutual Fund Dealers Association of Canada.
Matt graduated from McMaster University and currently resides in Oakville, Ontario, Canada, with his wife, Dr. Andrea Jack.
An Era of Unprecedented Breakthroughs
This new leadership coincides with an era of unprecedented T1D breakthroughs championed by Breakthrough T1D.
“We are in a golden age of advanced medicine and continue to see incredible progress in T1D cures research—in both disease-modifying therapies and cell therapies,” said Aaron J. Kowalski, Ph.D., Breakthrough T1D Chief Executive Officer. “As the leaders of our International Board of Directors, Lisa and Matt will ensure we will continue to drive cures and other life-changing breakthroughs forward through scientific advancements and advocacy.”
“We thank Grant and Michelle, who amplified our global efforts to improve lives and accelerate cures. There has never been a more exciting time for our mission as cures are now a matter of when, not a matter of if,” Kowalski said. “The potential for transformation is nothing short of electrifying and we look forward to the progress to come during Lisa’s and Matt’s tenure.”
About the Breakthrough T1D International Board of Directors (IBOD)
IBOD is the governing body for Breakthrough T1D and is tasked with accelerating the organization’s mission progress toward life-changing breakthroughs to cure, prevent, and treat T1D and its complications. Learn more about Breakthrough T1D’s volunteer and staff leadership.
